11 years ago
Monday, June 23, 2008
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"God gives the Mama's He trusts the most, His most delicate babies." - Unknown
Cystic Fibrosis & MSPI Sites
What is Cystic Fibrosis (CF)?
- CF is an inherited chronic disease that affects the lungs and digestive system. A defective gene causes the body to produce unusually thick, sticky mucous that clogs the lungs and leads to life-threatening lung infections, obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. The predicted median age of survival for a person with CF is now more than 37 years old.
Olivia's Meds and Treatments
- Digestive: *AquADEK vitamin (1 mL/day) *Creon 6 capsules (3 before each meal) *Prevacid Solutabs (1/day) *Vitamin D (2 drops/day) Respiratory/Pulmonary: *Albuterol (2 puffs/2-4x/day) *Pulmozyme (1x/day via nebulizer) *CPT-Chest Physical Therapy (2-4x/day) Antibiotic/Anti-Inflammatory: *none currently
Olivia's Gene Mutations
- Delta F508, Delta F508
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3 comments:
OMG! I'm so glad you posted this! How much fun was that?! I am still laughing my butt off! What a bunch of 'professional singers.' I don't know 'bout you, but I think they should quit their day jobs! LOL! Thanks for this! (Can't wait to see the other pics from that nite.) Again, we had a blast!
That cracks me up. I can't believe Scottie got up and did that, with the Palisade crew. Thanks for sharing!
I am holding not one, but TWO cups there, I might point out. Yikes. Thanks to God that one contained good old fashioned water, huh?
We had so much fun that night. Why did I even get up there and sing though? Whatev....
Sorry we missed the anniversary party. We were what they call 'traveled out' by that point.
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