We had a fun filled weekend with the 4th of July parade in Brownville and camping at Kirkman's with Aunt Sandy and lots of fireworks. Through the entire parade Addison was saying "canny, canny, canny." I didn't even know she knew that word. She really liked the sparklers and snaps and would say "pop" every time she heard a firework go off. She just couldn't get enough. She did very well camping and even slept through the night. She just loves the outdoors so we knew she'd have a blast!
CF is an inherited chronic disease that affects the lungs and digestive system. A defective gene causes the body to produce unusually thick, sticky mucous that clogs the lungs and leads to life-threatening lung infections, obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. The predicted median age of survival for a person with CF is now more than 37 years old.
Olivia's Meds and Treatments
Digestive: *AquADEK vitamin (1 mL/day) *Creon 6 capsules (3 before each meal) *Prevacid Solutabs (1/day) *Vitamin D (2 drops/day) Respiratory/Pulmonary: *Albuterol (2 puffs/2-4x/day) *Pulmozyme (1x/day via nebulizer) *CPT-Chest Physical Therapy (2-4x/day) Antibiotic/Anti-Inflammatory: *none currently
1 comments:
Addison is so damn cute!!!!
Post a Comment