Addison loves to play under the coffee table
Waiting for Daddy to come home
11 years ago
Tuesday, October 7, 2008
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"God gives the Mama's He trusts the most, His most delicate babies." - Unknown
Cystic Fibrosis & MSPI Sites
What is Cystic Fibrosis (CF)?
- CF is an inherited chronic disease that affects the lungs and digestive system. A defective gene causes the body to produce unusually thick, sticky mucous that clogs the lungs and leads to life-threatening lung infections, obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. The predicted median age of survival for a person with CF is now more than 37 years old.
Olivia's Meds and Treatments
- Digestive: *AquADEK vitamin (1 mL/day) *Creon 6 capsules (3 before each meal) *Prevacid Solutabs (1/day) *Vitamin D (2 drops/day) Respiratory/Pulmonary: *Albuterol (2 puffs/2-4x/day) *Pulmozyme (1x/day via nebulizer) *CPT-Chest Physical Therapy (2-4x/day) Antibiotic/Anti-Inflammatory: *none currently
Olivia's Gene Mutations
- Delta F508, Delta F508
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2 comments:
This photo of Addie waiting at the window for her Daddy is really precious. She is so photogenic!
I think you have the cutest little girl I have seen in a long time! I'm biased toward my three nieces, but Addison is a CLOSE fourth!
I love her smile. She just makes me laugh out loud with that big grin.
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