Another Step Closer to Home

Yesterday Olivia was moved out of the NICU to the hospital floor! Because she is no longer critical and is gaining weight they felt she was ready for the move. Over the weekend we were being prepped to take her home with monitors, TPN, feeding tube, the works. Surgeons and neonatologists felt that because her condition may take some time, possibly years for her bowels to adjust to feedings, that it may be best if we were at least home. I was very stressed about this but Monday afternoon the Cystic Fibrosis team made it clear that they would not do that. They want to make sure she is taking full feedings and off the TPN (nutrition running through her central line) completely, although most likely we will go home with the feeding tube. They came up with the idea to move us to the hospital floor and she is now more closely monitored by the CF team.

With the good news seems to come some bad. We've begun getting used to this. We were told that Olivia is becoming extremely anemic and unless she can make a turnaround this week she will need another blood transfusion. She did have several after surgery but this came as a surprise as we were leaving the NICU that it's a strong possibility she may have another.

I'm hoping the move will re-energize us and things will turnaround quick. The power of positive thinking is my focus now. It's hard not to get sucked into all the bad or frustrating things that happen but the move feels like we're taking a big step toward home!